Direct-to-Consumer Genetic/DNA Testing: Actions Consumers Can Take to Protect their Health Data

Brought to you by the WEDI Privacy & Security WG and Genomics WG: The bankruptcy announcement of the direct-to-consumer genetic testing company 23andMe, and its impending sale, highlights the importance of consumer genetic data protection.  WEDI has developed a Fact Sheet to aid consumers understand the data privacy issues and risks, available laws that protect consumer data versus genetic data, along with recommended action steps to protect their own genetic data in the event they had completed a direct-to-consumer genetic testing.